March 9, 1998
See London
Ontario Woman With MS Plans to Open Buyers Club In Defiance of Prohibitionist Mayor Ottawa
Citizen
By Luiza Chwialkowska
letters@thecitizen.southam.ca
http://www.ottawacitizen.com/
A FEW PILLS FROM DEATH
Jim Wakeford isnt a criminal - just a very sick man with a very big
mission.
TORONTOThe most recent - and potentially most
serious - challenge to Canadas drug laws comes not from a long-haired hippie bent on
bringing down the establishment, but from a dying man who has spent most of his life
helping kids stay away from alcohol and drugs.
When he was young and broke and couldnt afford a phone, Jim Wakeford tied
tin cans to a rope and dropped them out of his apartment window so street kids could
summon him down when they were in trouble. Now his doctor says he
might die without marijuana, and his lawyer says that not on1y should he be allowed to
smoke the drug, but the federal government should supply it.
On Thursday, Mr. Wakeford, a 53- year-old Toronto AIDS
patient, filed a civil suit in the Ontario Court of Justice against the Canadian
Government demanding that he be exempt from laws against cannabis, and more audaciously,
that the government be required to supply the drug to patients who need it. His case is
scheduled to be heard on May 4.
Until then, Alan Young, the Osgoode Hall law professor who is fighting a number
of drug-rights cases, is scouring the world for experts who will tell the court that
cannabis is a legitimate medical treatment and that Mr. Wakeford is not a criminal.
Meanwhile, Mr. Wakeford is reluctantly lighting up joint
after joint at the request of television news crews, and trying to use the skills he
acquired over a lifetime of charity fund-raising to raise the tens of thousands of dollars
he needs to fight what will likely be his last great cause. He has raised $6,000 so far.
Mr. Wakeford doesnt look like a criminal. Nor does he look like a man
with enough strength to take his government to court.
Even if you didnt know that he has spent the past five years only a box
of pills away from death, you would notice the slightness of his frame, the lightness of
his step, and the translucence of the skin draped over his hollow cheeks.
There is a fragility about him that makes you worry whether he will slip away
when youre not looking, or whether he is really there to begin with. The quiet calm
of his voice makes you wonder, mid-sentence, if hes really speaking. So ethereal is
his presence and unremarkable his appearance, that to meet him walking home in his
plainer-than-plain blue jeans, jacket, and white sneakers, its easy to imagine him
slinking by unnoticed to some lonely bare-walled mom to wait for his illness to take its
final toll.
Yet as Mr. Wakeford makes his way through the neighbourhood, passersby
recognize him. "You cheeky devil. I saw you smoking up on TV last night!" calls
out a young man. At the local greasy spoon where he takes his bacon and eggs in the
morning, a sympathizer at another table secretly pays for Mr. Wakefords breakfast
before he can ask the waitress for the bill.
And when he finally makes it to his Church Street apartment - a going-away gift
he bought himself when doctors told him in 1993 that he had two years left to live - the
rooms are bursting with light, life, and colour. In this determinedly cheerful place where
he planned to die, even the powder-room ceiling is sunflower yellow.
Five defiant years after receiving his death sentence,
Mr. Wakeford sits in a wine-coloured leather chair under a soaring three-metre ficus tree,
his gaunt face lit up by sunshine pouring in from a terrace overlooking streets that be
calls "the heart of Torontos gay ghetto."
The brightly painted walls are crowded with paintings, posters, and photographs
of the friends and celebrities who love him. There are awards for the good works he has
done, like founding Oolagen House, a treatment facility he started in 1967 out of his home
to help Torontoís street kids in trouble with drugs. Last year, Oolagen House celebrated
its 30th anniversary and reported an annual operating budget of more than $2
million.
There are so many pictures of friends and admirers on the walls that its
easy to overlook the eerie photo of a once-healthy and robust Mr.
Wakeford showing a once-lively Diana, Princess of Wales, around Casey House, the reknowned
AIDS hospice whose foundation he built.
And somewhere in this incongruity, in the gap between the smallness of his
voice and the bigness of his achievements, between the vulnerability of his body and the
immutability of the law, lies the reason this soft-spoken son of a Saskatchewan miner is
taking the Government of Canada to court.
"What has marijuana done for Jim Wakeford? It has
allowed him to live," says John Goodhew, a Toronto AIDS specialist and Mr.
Wakefords physician.
"I am offended by the way some media have been covering my case so
far," Mr. Wakeford says. "They make light of it, as though it is not a
significant and necessary part of my medical regime."
He doesnt smoke marijuana for fun, he maintains. He smokes three joints a
day, in the afternoon, to counteract his medication, which leaves him nauseated and unable
to eat.
"I dont think he would be taking his anti-HIV medications if he
wasnt on marijuana," says Dr. Goodhew, who prescribes the battery of 40 pills
that has raised Mr. Wakeford's life expectancy from a year to a level he now says he
"doesnt presume" to predict.
"Thanks to the medications, his
immune system went from 10 to 15 per cent of normal strength to 40 or 50 per cent now. The
virus in his blood dropped to undetectable levels," Dr. Goodhew explains.
But as the medications began to give Mr. Wakeford back his life, Dr. Goodhew
says, they also gave him nausea and diarrhea, killed his appetite and caused him to lose
drastic amounts of weight.
"His chart was improving dramatically, but every time I saw him, he looked
sicker and sicker.
"His cheeks sunk in, he had no butt, his arms and legs were like
sticks," Dr. Goodhew says. "He knew that on these medications, he was wasting
away."
Mr. Wakeford was wasting away be-cause of a peculiarity of the new-generation
AIDS drugs, called protease inhibitors, that only work if taken
according to a strict schedule. Four of Mr. Wakefords medications have to be taken
on an empty stomach, which means he cant eat for three hours before taking them.
"The thing about these drugs is that you have to comply 100 per cent with
the schedule to keep the virus from reproducing," Dr. Goodhew says.
"He takes four anti-stomachs a day, meaning that he cant eat for in
hours out of each day. He has four one-hour intervals when he can eat, but the pills kill
his appetite in that window."
Dr. Goodhew says Mr. Wakeford has tried the all available
anti-nausea medications, and none worked until he tried smoking marijuana. Dr. Goodhew
stops short of saying whether he suggested marijuana to Mr. Wakeford, saying only that,
"When Mr. Wakeford informed me that he was using it, there was a dramatic
improvement."
And Mr. Wakeford is not a unique case, says Dr. Goodhew, who treats 200
HIV-positive patients. He estimates that one-quarter to one-half of
his patients on anti-HIV medication use marijuana on a "semi-regular" basis.
"Patients who use it continue to use it with my knowledge and
consent," he says. "Medically, I think it is a worthwhile cause. It is absurd to criminalize a product that is so useful, effective,
inexpensive, and so non-toxic compared to all the pharmaceutical alternatives."
If an AIDS patient were arrested for buying marijuana and had to spend even 24
hours in prison without following his drug regime, Dr. Goodhew argues, the virus could
reproduce so quickly and drastically that there would be no turning back.
"I just find the marijuana laws ludicrous," Dr. Goodhew says. "I
cant take them seriously. I cant believe that anyone, except a small group of
police, takes them seriously."